Ainsley Angel- Facebook

Registration is underway now for the Ainsley's Angel Sunset 5K scheduled for July 25th in Lake Charles.

The race begins a half hour before sunset at the Lake Charles Civic Center and participants will enjoy a Finishers' Festival at the Amphitheater featuring food, music, and giveaways.

Ainsley is the daughter of a United States Marine. She was diagnosed with an extremely rare and terminal condition called Infantile Neuroaxonal Dystrophy (INAD) just before her fourth birthday in 2003. There were only 20 active cases in the United States. It would eventually rob Ainsley of her ability to respond to any stimuli, and her life. Most children die before the age of 10.

Her family began these runs in Virginia in 2007. On the course, Ainsley smiled with joy as the wind blew in her face and other runners passed her by. More races for Ainsley, her family and other people across the nation followed.

Ainsley is beating the odds and is now 13.