Spinal Muscular Atrophy is known as SMA to the parents of Isabella and Trevor.

The motor nerve cells in the spinal cord of these children are affected, so things that most kids take for granted, kids like Trevor and Isabella can't do.

Never heard of it? It's a reality for many parents across Louisiana and our nation. One out of every 10,000 kids will be born with MSA.

MSA can rob a child of the ability to walk, eat or even breathe.

Information about the fundraiser and the giveaway of a 1,260 cabin on the Bogue Chitto River in McComb, Mississippi can be found at http://www.curedatsma.org.

There will be several beneficiaries of the money raised including:

The daily fight against MSA for Trevor and Isabella

Trinity Outdoors

MDA Summer Camp

Pay It Forward Networking

Cure SMA

Addie's Angels

Stephen Melara is hoping that you will share this information so that people can learn about MSA, and make a donation to the group.

The big dayt for the group this year is on Saturday, April 7 at Route 92 Bar at 2600 East Milton Avenue in Youngsville. Check it out on Facebook by clicking here.